West's Syndrome - information and support

If you are looking for information about West’s syndrome (a brain disorder characterised by infantile spasms, a specific EEG pattern and sometimes learning disability) then you may like to read the information sheet produced by ICH Institute of Child Health.
The information leaflet covers possible causes, diagnosis, disease progression and treatments.
To read the leaflet follow this link -
http://www.ich.ucl.ac.uk/gosh_families/information_sheets/wests_syndrome...
There is a support group for West's syndrome and the details are below:
West Syndrome Support Group
c/o Contact a Family
209 – 211 City Road
London EC1V 1JN
Tel: 01252 512707
Email: info@cafamily.org.uk
ShareThis

Read about users experience of tests and operations their children have had. Or add your own.
Going out? Search places our users have reviewed. Or add your own review.
Look for or recommend a specialist in your childs condition with our find a specialist tool
Find "free from" recipes that are suitable for your child or add your own "free from" recipe
Watch health related videos in the parentsown video centre
The parentsown "Free From" supermarket: helping you find foods that are suitable for people with allergies and intolerances.