Teenagers Waiting For Heart Transplants

Teenagers waiting for heart transplants:

Great Ormond Street have a really useful website called ‘teens first for health’ which can help and support teenagers facing difficult medical procedures and help them come to terms with a diagnosis. Visit the website:
Children First

The Great Ormond Street article says that most young people will wait less than 18months for a new heart. To help teenagers cope with the wait they suggest that teenagers try to talk with someone who has already had a transplant – try www.heart-transplants.co.uk . On this website you can also read the story of a child called Lucy who had a heart transplant in 2006:

http://www.heart-transplants.co.uk/lucy.html
.
Other organizations that may have useful information are:

Cardiomyopathy Association. http://www.cardiomyopathy.org/ (they have a section just for Cardiomypathy in the young)

Children's Heart Foundation. http://www.childrensheartfoundation.org/ (they have useful publications and stories of children with congenital heart disease)

HeartLine http://www.heartline.org.uk/ (an organization dedicated to children with heart disease and their families)

British Heart Foundation http://www.bhf.org.uk/ (they have useful publications and factfiles)

www.transplantsupportnetwork.org.uk (can help you get in touch with someone who’s already had the same kind of transplant)

www.uktransplant.org.uk (interesting statistics and FAQ’s)

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