Kitty's picture
Submitted by Kitty on Mon, 09/07/2009 - 12:57.

Hi
Your story is very much like our own in that when are boys were young we kept going to doctors/A&E and really struggled to get anyone to recognise how much pain they were in. One of our sons had silent reflux and one had severe projectile vomiting with their reflux. We recently found out that their reflux was a symptom of another gut condition called EGID and now their are receiving the right treatment they are improving.

When they scream and cry in pain it is awful - i felt like it was torture. I just wnated to do something to help but couldn't. I am sure your baby will improve with time but if he doesn't then dont' be afraid to keep pushing for another opinion. It took us 4 years to get to great ormond street for another opinion, but thank goodness we did as they gave us the answers we'd been desperately looking for.

good luck,
Kitty

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