i need help

My little boy is 6. He has EGE, we have know about for 2 months.  He has been in the hospital once since we learned about his EGE.  This past weekend was really rough, was in the ER on Sunday, they gave him a enamia to help pass stool.  Well he isnt getting any better, his GI DR. upped is gastorcoma yesterday but he is still in pain.  on a scale of 1-10 his pain level has been no lower then a 5 and now is at a 8.  Please help, is this what I have to live with, My little boy in so much pain.  The Gi clinic just called, so now i have a 2 hr dive to the Dr office, please pray they help my little guy.

Brandi

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