Submitted by shell74 on Mon, 03/01/2010 - 16:06.

Hi Debbie, the only way egid can be diagnosed is by biopsies and scopes, but from your discription i would say it sounds as if your daughter has egid. My three were all diagnosed at an early age although we were told for a long time that they had crohn's. My son runs a eosinophilic teens yahoo group if your daughter is intrested. The two boys are both tube fed and are on eo28 extra unflavoured.

I am guessing your daughter is on nalcrom, singleair (montlukest) maybe sulfasalazine or pentasa prednisolone etc.

 

If you want to have a chat you can contact me on shellstevelucas@tesco.net.

all the best,

michelle mum to 3

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