Hi Katie, I have not been on here for a while but i was reading your post, we have three children with ee,ec,and ed and we are also seen by dr e. our two boys have gastrostomy's and are on a multitude of drugs and our daughter is on a very restricted diet and on all sorts of drugs, our children are aged 13,10 and 9. We have been with dr e since our 13 yr old was 2.

all the best,

Michelle mum to 3

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