Hi Debbie

So sorry to hear what a tricky time you have been having. It really sounds like it could be EGID to me but i'm no expert.

My 2 boys had vomiting, diarrhoea, stomach pain, joint pains, reflux etc. They were diagnosed on the basis of their symptoms and because treatment helped a lot. Most kids seem to be diagnosed on basis of biopsies - why couldn't they give u a firm diagnosis after finding eosinophils on her biopsy?

Are you seeing a local consultant or are you now seeing a gut specialist?

Most of us are seen at Great Ormond Street. There is an excellent consultant there called Dr Neil Shah and he treats lots of kids with EGID. I asked my local consultant for a referral to him for a second opinion and it was the best thing i've ever done as things have improved so much since seeing him! 

How long has your daughter been ill for?

My eldest had food allergy testing done and it was all negative but we know through diet elimination that he can't have dairy, soya, egg so i don't think they are very reliable tests.

I really hope you can get more help and support. Must be a big worry for you.

Kitty