Hi,

I have a 13 year old daughter and I am convinced she has EGID. She was seen by a consultant when she was four and was diagnosed with stomach migraine and had several admissions for dehydration due to vomitting etc. In April last year she had a very bad episode and had another spell in hospital  with vomitting and excrutiating pain with her eosiniphil levels being extremely high. After several months of retaking her bloods and these still being high she was referred to a paedatric gasto consultant who repeated her bloods with a IGE of 4500 and eosiniphils still very high too. She had biopsies taken which showed she had eopsiniphils in all eight biopsies taken  and also inflammation on her gullet but they are convinced she has a food allergy. Despite skin prick tests all being negative which had now been through eleminating wheat, gluten, milk and soya but she is still in pain. They have now put her on a cocktail of drugs including steroids and one for asthma (despite her not having asthma). The next step is for her to be admitted again and to have E028.

I also note that she parents were commenting that their children have joint pain which my daughter has in her knees which has just been fobbed off.

I was just wondering how your children were diagnosed and whether what I have described sounds like EGID.

Debbie