Hi Kitty

How are you doing? how are your kids?  Well Orla has now had her Gastrostomy and so far she's doing really well.  The op was fairly traumatic but she recovered very quickly and already I am so glad that she we did it.  she looks so lovely with out the tube down her nose and tape on her face.  We have started overnight feeding too which is going well and means that we can go to bed earlier!   They also did another endoscopy and found that the inflamation had reduced so don't feel that she needs to go on the steroids now which is great news.  So all in all things are going well.  She still won't eat a thing orally but one step at a time!

Hope all is good with you

Katie

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