thanks for reassuring me about the endoscopy. i think we are going to wait and see how it goes over next few months, the choking has got better in the last year and may continue to get better (fingers crossed!).
i understand your frustration. My experience of Dr Shah has been fantastic. He returns calls very quickly (usually same day) and he responds to letters/faxes. I dont know exactly how long the waiting list is because we paid to go privately the first few times whilst we waited for our name to come to top of the NHS waiting list. We got a private appointment within about 2 weeks. I can't remember how much it cost but it was money well spent! His private clinic is held at GOSH in the private wing.
We'd struggled for years, but as soon as we met Dr Shah he was supportive and knew what was wrong with the boys - what a relief. Things have kept getting better ever since so I am very grateful to him.
If you want to switch then i'd give it a go. From what I've been told Dr Shah is the top guy in this area.
My youngest only had the steroids once when he had a bad flare up. He took them for a week. We've avoided them since just because he was unsettled and unhappy on them (but like i said, that could have been coincidence!). He had a flare up last week but it seems to be settled down again.
I'm glad it's weekend tomorrow too! Off to my mums with the boys, for some rest!
Hi
my two are aged 3 and 5.
thanks for reassuring me about the endoscopy. i think we are going to wait and see how it goes over next few months, the choking has got better in the last year and may continue to get better (fingers crossed!).
i understand your frustration. My experience of Dr Shah has been fantastic. He returns calls very quickly (usually same day) and he responds to letters/faxes. I dont know exactly how long the waiting list is because we paid to go privately the first few times whilst we waited for our name to come to top of the NHS waiting list. We got a private appointment within about 2 weeks. I can't remember how much it cost but it was money well spent! His private clinic is held at GOSH in the private wing.
We'd struggled for years, but as soon as we met Dr Shah he was supportive and knew what was wrong with the boys - what a relief. Things have kept getting better ever since so I am very grateful to him.
If you want to switch then i'd give it a go. From what I've been told Dr Shah is the top guy in this area.
My youngest only had the steroids once when he had a bad flare up. He took them for a week. We've avoided them since just because he was unsettled and unhappy on them (but like i said, that could have been coincidence!). He had a flare up last week but it seems to be settled down again.
I'm glad it's weekend tomorrow too! Off to my mums with the boys, for some rest!
take care,
Kitty