Hi Katie
you lucky thing going to Australia!! really glad you had a good time. i am sure you really needed a break.

it's great that you are enjoying being back at work.

I completely understand why you have gone for the PEG, hopefully this will make it easier on all of you. I hope the waiting list isn't too long.

My son was okay on steroids but he was quite irritable and went off his food and didn't sleep well ... the thing is that I can't be sure it was the steroids as this happens when he's having a flare-up anyway. it could be that it just coincided with him being on the steroids.

We were told to be careful that we didn't expose him to chicken pox whilst he was on the steroids so I did limit going to busy playgroups etc till he finished them.

My two are okay thanks. My eldest is doing brilliantly. My youngest is still hit and miss - but still much better than he was. His eating has improved but I'm nervous his eating will deteriorate again if he chokes badly again. He hasn't choked as much lately so this is good. It's just that they aren't sure if his choking could be due to some inflammation in his oesophagus caused by the EGID... or if it could be something else. The only way to check is to do an endoscope/biopsy but my husband and I really don't want him to have this done. Has Orla had it done? Was it upsetting for her? Did you have to stay in hospital overnight?

Anyway, I hope things improve for you soon,

Kitty