Hi Kitty
Thank you for your email. We went away for Christmas (we bravely went to Australia to visit my brother!) amazingly all went well and although Orla had a couple of bad days, overall it was a great holiday.
I have also started back at work which has been a tough transition but it's going well and I am feeling a lot more like my old self again. Orla is being looked after by my mum 2 days and a nanny 2 days and then I am home on Friday so it's working well. We have made the decision to have the PEG and are just waiting for a date as we are on the waiting list. I'm still nervous but feel that's it's definitely the right thing to do. She hasn't started the steroids but I actually put a call into Dr Elawad today as I feel we should start them. She's better but still has some really bad days of puking and terrible bile.

Did you 2 experience any side effects from the steroids?
How are your 2 doing? How was your christmas?
ALl the best
Katie