Hi Kitty<
Thanks for your reply. I am glad that there was some good news after your visit to GOSH. I just don't know how you cope with 2 children with this problem, i struggle so much with just one. Sorry that your youngest is having such a tough time - it's just so heart breaking isn't it. I would do anything to see Orla eat something and have a day with out vomiting. Did either of your 2 retch a lot? Orla retches yellow stomach bile which really upsets her and can wipe her out for hours.

The meds she is currently taking are Ranitadine, Domperidone, Certirizine, Nalcrom and Ondansetron. To be honest they aren't working at all so I am keen to start the steroids as I am desperate to see some improvement. She has been on Neocate since she was 3 months and has just moved onto Neocate active. Orla is still very underweight and hasn't yet doubled her birth weight. She's one next week and I am hoping we will have a good day.

Do you also see Dr Shah at GOSH? I seem to be the only person who doesn't see him? Do you know Dr Elawad? We are still seeing the dieticians and feeding specialists at Kingston hospital near to where we live and so far they have been quite good. Is there a long waiting list to see them at GOSH? Where do you live by the way?

We went to our first playgroup yesterday and it was tough as so many people stare at her with the NG tube and although I don't care I worry that she will feel self conscious.

Oh, there is so much to worry about isn't there.
Take care
Katie