Kitty's picture
Submitted by Kitty on Sun, 11/08/2009 - 08:17.

Hi Jane

Thank you so much for telling us your story. I hope my 2 sons grow out of EGID but if they don't then I feel more confident that they can learn to manage it and can still live a happy life.

It's interesting that you say there is a dull pain there most of the time. I have suspected with my 2 that they have some pain most of the time but only get very distressed when it's really bad. My eldest gets very defensive if i ask him if he's uncomfortable and I suspect this is because he doesn't like going to the hospital for appointments.

It's very sad that it took you so long to get a diagnosis - must have been awful for you. It took us 4 years and I thought that was long enough. I really hope that the medical profession get better at diagnosing and treating this awful illness.

I hope you are feeling better soon and can eat more foods.

Kitty

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