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Hiya
Really sorry to hear you are having a battle. Has your daughter improved at all since going to GOSH? There is another mum on here with a 4 year old son who has both EGID and Ehlers Danlos too - her blog is; http://www.parentsown.co.uk/blogs/helenb8man
I wonder if the 2 conditions are connected?
It's sad that it's taken all of us so long to get a diagnosis for our children. They suffer so long. I hope things change. What symptoms did your daughter start with? Was she ill from birth?
I am in Berkshire. Where are you?
Take care,
Kitty