The Information centre is a resource that is created by the users of Parentsown.co.uk.
If you have information (white papers, useful links, studies, advice etc) that you think other parents could benefit from add a page (using the link below) to create a new page in the Brain Damage and Injury Information centre book.
All links will automatically turn in to a web link, and you can attach files (pdf's, Word documents etc) if you wish.
The more pages we add the more information there will be for parents to search on.
If your child has been diagnoses with Joubert’s syndrome (a brain disorder that can cause physical, mental and, sometimes, visual impairments) then you may like to read the ICH Institute of Child Health information leaflet.
It covers causes, how it's diagnosed, symptoms and treatments.
To read the information leaflet, follow this link:
http://www.ich.ucl.ac.uk/gosh_families/information_sheets/joubets_syndro...
1)Brain Injury.com
http://www.braininjury.com/children.html
2)The childrens trust
Provdies care, thereapy and education for children with disabilities and complex health needs and rehabilitation for children with acquired brain injuries
www.thechildrenstrust.org.uk
01737 365000
3) BIBIC (Biriths Insitute for Brain Injured Children)
www.bibic.org.uk
01278 684060
4) Brain Injury Rehabilitation Trust (BIRT)
www.birt.co.uk
01924 896100
5) Brainwave Centre
www.brainwave.org.uk
01278429089
6) Headway – the brain injury association
Providing information and and advice for brain injury survivors and their family.
www.headway.org.uk
0115 9240800
7) Queen Elizabeth’s Foundation Brain Injury Centre
www.qefd.org/braininjury
01737 356222
8) PHAB Limited
www.phabengland.org.uk (England)
020 86679443
www.fabb.org.uk (Scotland)
0131 4752313
www.phabni.org (Northern Ireland)
028 90504800