Buried Bumper syndrome

As many of you know Steve and I have three children at varying stages of Eosinophilic disorders. Our two boys Have G-pegs (gastrostomy). The boys have both had problems with discharge and bleeding from their sites, after battling for months against infections I gave up and took them to see their gastro nurse on friday. Josh had have nitro put on his site for a few days which was fine I could do it at home rather than going back to the hospital every 3 days. So i was given numbing gel and Nitro sticks and a tube of vasaline for him.

It then came to Callum who in 6yrs of having a peg(had a N.G tube for 2yrs before that) has never had any problems at all and I mean no problems his site is beautiful. For weeks he has had a thick discharge and has been on several antibiotics which made him ill. With a peg you need to turn it twice a week and push it into the stoma and pull it back out, we had noticed over the last few weeks that it had became stiff.

Debbie the gastro nurse tried to push Cam's tube in and it would move at all (whilst she was doing this cam went as white as a sheet) she tried several times but with no Joy. After having a feel of his stomach it was decided that he had buried bumper syndrome.

Luckly our local consultant was on call and he told us that Callum needs to have a small op to deal with the problem he would be put on a emergancy list but if there was no cancellations it would be done on t he same day in June as Josh gets his peg changed. I thought ok thats fine.

Then came the next bit, if callum has any stomach pains we must stop his feed (his main source of nutrition) and get him to Hospital ASAP.

I was'nt sure why until I spoke to our dietitian yesterday who said we had to be very careful as the feed could go into the peritoneum which can cause peritnitis, she was very concerned that the hospital has let us continue to use the peg.

The person I would have normally talk to about this is looking after her poorly little boy. I am now watching Callums every move, I was up most of last night just checking on him. Steve has taken him to school but they know that they have to phone if he shows any symptoms.

If anybody has any of experiance of buried bumper syndrome I would love some advice.

I have just had a call from school to say callum is a lot of pain and has switched his feed off so it looks like we will be off to hospital.

Thanks,

Michelle.

P.S well done to my hubby for doing a week on Elemental to raise awareness of this awful disorder.

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